Welcome to the Shades for Migraine Partner Directory! Your destination to finding resources on all things migraine, from education to advocacy and so much more! The Shades for Migraine coalition consists of 35+ organizations and bloggers, all offering unique resources to the migraine community. Learn more about each organization and use the key below to help you find an organization that provides what you’re looking for.
(A) = ADVOCACY
(E) = EDUCATION
(R) = RESEARCH
(AW) = AWARENESS
(EV) = EVENTS
(B) = BLOG
(M) = MAGAZINE
(T) = TREATMENT
ALLIANCE FOR HEADACHE DISORDERS ADVOCACY (A)
The ADHA is comprised of nonprofit organizations who are vitally concerned about the health of patients with headache disorders including migraine disease, cluster headaches, chronic daily headache, new daily persistent headache, tension-type headaches.
Since 2007, AHDA has advocated consistently for increased recognition of, and more equitable federal policies towards, Americans with disabling headache disorders. These advocacy efforts have been expressed through nine annual Headache on the Hill (HOH) congressional fly-in events in Washington, DC, as well as multiple other activities throughout the years. Become an advocate. Use your voice to make a change.
“AHDA believes in building awareness and reducing stigma around migraine and headache disease. We support Shades for Migraine as a champion in this space. “
Learn more about Alliance for Headache Disorders Advocacy:
AMERICAN MIGRAINE FOUNDATION (E) (R) (A) (SG)
Education, Research, Advocacy, Support Group
The American Migraine Foundation (AMF) is a non-profit organization dedicated to the advancement of research and awareness surrounding migraine, a disabling condition that impacts more than 37 million men, women and children in the United States. The AMF was founded in 2010 to provide global access to information and resources for individuals with migraine as well as their family and friends. Working alongside the American Headache Society, the AMF mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into treatment advances for patients with migraine and other disabling diseases that cause severe head pain.
“The American Migraine Foundation is dedicated to driving awareness of the widespread effects associated with migraine. By empowering those living with the disease, we can cultivate a movement that gives a collective voice to the migraine community.”
Learn more about the American Migraine Foundation:
ASSOCIATION OF MIGRAINE DISORDERS (E) (R) (AW)
Education, Research, Awareness
The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease and its true scope. Because migraine is a full body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. AMD also believes that migraine has yet to capture the support of the general public and therefore it hosts Shades for Migraine, a playful, collaborative public awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community.
Learn more about the Association of Migraine Disorders:
Associazione Cefalea Ticino (E) (EV) (SG)
Education, Events, Support Group, Facebook Group
The Associazione Cefalea Ticino is a nonprofit association that promotes communication, discussion, and mutual support among people with headache or migraine.
Information and prevention are the most effective weapons. The Associazione Cefalea Ticino promotes information and prevention initiatives aimed at increasing the knowledge of headache. The association is committed to the Ticino territory, carrying out its activities in the field of health education by promoting events in collaboration with specialist medical staff. Health education meetings on headache issues in all its forms also take place with the aid of audiovisual material. Fundraising during awareness campaigns occurs through the sale of beneficial products. The Associazione Cefalea Ticino has contributions and donations from its associates and supporters.
Learn more about the Associazione Cefalea Ticino:
Associação Brasileira de Cefaleia em Salvas e Enxaqueca (ABRACES) (E) (R) (A) (EV) (SG)
Education, Research, Advocacy, Events, Support Group
The Associação Brasileira de Cefaleia em Salvas e Enxaqueca (Brazilian Association for Cluster Headache and Migraine) is a cluster headache and migraine advocacy association aimed at improving patients quality of life by raising awareness, promoting disease education, and fighting for disability rights
“We want to be one voice in the world united against cluster headache and migraine!”
Learn more about the ABRACES:
CHAMP - Coalition For Headache And Migraine Patients (A) (EV)
Advocacy & Events
The Coalition For Headache And Migraine Patients (CHAMP) provides support to people with headache, migraine and cluster diseases who are often stigmatized and under-served.
CHAMP brings together organizations and leaders in this disease area to enhance communication, coordination and collaboration to more effectively help people wherever they are on their patient journey.
By working together, our patient advocacy community will be more effective in securing more research funding, increasing public education and improving treatment options available to those with headache diseases.
Learn more about CHAMP:
Chronic Migraine Awareness, Inc. (E) (A) (EV) (SG)
Education, Advocacy, Events, Support Group
Chronic Migraine Awareness, Inc. (CMA, Inc.) is the
voice of the chronic migraine community. We offer support, information and
education to empower individuals to advocate for their health.
“Migraine is a genetic neurological disease that is highly stigmatized. Getting the word out that migraine attacks are more than just a headache is imperative to reducing migraine disease stigma.”
Learn more about Chronic Migraine Awareness:
Danielle Byron Henry Foundation (E) (A) (EV)
Education, Advocacy, Events
Established in memory of our daughter and sister, Danielle, our mission is to raise awareness and provide support and access to treatment for those living with migraine disease, especially young adults and children. On June 21, we are proud to join the Shades for Migraine Coalition at our “Shine Her Light” celebration in Salt Lake City.
Learn more about the Danielle Byron Henry Foundation:
European Migraine and Headache Alliance (EMHA) (A) (EV)
Advocacy & Event Participation
The European Migraine & Headache Alliance is a non-profit, patient umbrella group which was launched in 2006. Since then, the Alliance has grown to represent 30 patient groups from across the continent. EMHA is an active member of the European Federation of Neurological Alliances (EFNA), the International Association of Patient Organizations (IAPO), the European Patients Forum (EPF) and also works closely with organizations such as International Headache Society (IHS), European Headache Federation (EHF), European Brain Council (EBC), European Academy of Neurology (EAN) and others.
Learn more about the European Migraine & Headache Alliance:
Global Healthy Living Foundation (E) (A)
Education & Advocacy
The Global Healthy Living Foundation is a 501(c)(3) non-profit organization with the mission to improve the quality of life for people living with chronic illness. They host a network of patient advocates called the 50-State Network. Through the 50-State Network, they help empower people living with chronic diseases like migraine to better advocate for themselves and others. Recently, they published Migraine Patient Guidelines, a document vetted by both people living with migraine disease and medical professionals.
“We believe that it is critical to support organizations like the Association of Migraine Disorders in their effort to raising the profile of migraine disease. Migraine is often an invisible and stigmatized disease, we must do all we can to raise awareness.”
Learn more about the Global Healthy Living Foundation:
Headache and Migraine Policy Forum (A) (E) (EV)
Advocacy, Education, Events
HMPF is a 501 (c)(4) non-profit advocacy organization comprised of diverse stakeholders with a mission of advancing public policies and practices that promote accelerated innovation and improved treatments for persons living with headache disorders and migraine disease. HMPF uses a campaign-style approach to address clinician and patient access issues on a state and federal level.
“HMPF is proud to join our member partner organizations in raising awareness and reducing stigma for persons living with migraine disease and headache disorders. We hope that by coming together we can make sure the general public – including policymakers – better understand the impact of this chronic disease. “
Learn more about The Headache and Migraine Policy Forum:
HealthyWomen (E) (A) (B)
Education, Advocacy, Blog
HealthyWomen is the nation’s leading independent, nonprofit health information source for women. Our mission is to educate our audience of women age 35+ so that they can make informed health choices for themselves and for their families.
“Chronic migraine affects mostly women. So as a women’s health organization, we believe in the importance of raising awareness around how migraine affects women, especially in light of sex differences.”
Learn more about HealthyWomen:
Help for Headaches (E)
Help for Headaches began as a Migraine support group in Windsor, Ontario, Canada in 1994. In 1995 we registered as a nonprofit organization (NPO) and became registered as a Canadian educational health charity. They function on a voluntary basis and take pride in providing Headache and Migraine sufferers with recently emerged headache awareness research, as well as providing migraine patients with specialist contacts. Today, they serve the needs of Headache and Migraine sufferers across Ontario and some outlying parts of Canada.
We have authored a series of books on Headaches and Migraines. These include: Headaches That Persist (1999), Chronic Daily Headache (2013), Non-Drug Treatments for Headache (2016) and Navigating Toward Better Headache Care (2018). Our latest book called Navigating Toward Better Headache Care discusses the many things you can do while waiting for a physician’s appointment. The book is a national voluntary project, you can order a copy from our charity website at http://www.headache-help.org/book-navigating-toward-better-headache-care.
Learn more about Help for Headaches:
Migraine.com (E) (B)
Migraine.com is Health Union’s online community dedicated to people living with migraine, where patients and supporters of people living with this condition can connect, share experiences, and learn about managing the condition. At Migraine.com, we understand the challenges of living with migraine. Whether you’re newly diagnosed, undiagnosed, or already know the ropes, the Migraine.com community is here for you. Because we understand migraine is more than “just a headache.”
Learn more about Migraine.com:
MigraineAgain.com (E) (B)
One of the leading online content communities founded by patients, for patients, Migraine Again offers original articles, interviews and insights on living and working with one of the most debilitating diseases on the planet. Founded in 2014 by Chronic Migraine warrior Paula K. Dumas, we empower people to suffer less and live more, until there’s a cure. To thrive despite migraine, subscribe to our free weekly newsletter.
Learn more about MigraineAgain.com:
Migraine Association of Ireland (E) (A) (EV)
Education, Advocacy, Events
We are Ireland’s only charity dedicated to migraine and headache disorders. We are a supporter orientated organisation which provides information, support and reassurance to those who suffer and their families. We also advocate on behalf of migraine sufferers to access new treatments. We run educational events for the Public and for Health Care Professionals, operate an Information Line (1 850 200 378 – Mon – Fri- 10am – 1pm 2pm – 4pm) and produce a supporter’s magazine three times a year with national and international news of interest to those with migraine. We also have a variety of information resources on social media and we have a selection of Information Leaflets including our migraine diary to help track and identify triggers.
Learn more about the Migraine Association of Ireland:
MigrainePal (E) (B)
USA, UK, Canada, Australia
MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves. MigrainePal is authored by Carl Cincinnato who works with several charities and organizations to help lift the global burden of migraine. These include Headache Australia, the Brain Foundation, the Coalition of Headache and Migraine Patients, and the European Migraine and Headache Alliance. He is a member of the International Headache Society, and co-host for the Migraine World Summit. Carl is a passionate advocate who has featured in national TV, print and radio stations advocating for the need to increase research funding, reduce stigma, and increase patient support.
Learn more about MigrainePal:
Migraine Québec (E) (EV) (SG)
Education, Events, Support Group
Migraine Québec’ mission is to offer support and information throughout Québec to those living with migraines or headaches, and to their family and friends, to help them better manage their condition and break isolation. A non-profit founded in 2014, Migraine Québec exists thanks to the collaborative efforts of volunteer patients and doctors.
- Reliable medical information on our website (in French)
- Support groups in several major cities throughout Québec
- A private Facebook support group called “Partage Migraine Québec” (in French)
- Conferences, webinars and workshops in Montréal on various subjects related to migraines and headaches
Learn more about Migraine Québec:
Migraine World Summit (E) (A) (EV)
Education, Advocacy, Events
The Migraine World Summit is largest patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education. Each year the event brings together tens of thousands of people to learn from world-leading doctors, experts, and specialists. It is available free and online. For more details or to register for the next event, visit www.migraineworldsummit.com
“We are pleased to support this effort to bring greater awareness and recognition for migraine.“
Learn more about the Migraine World Summit:
Migraine Research Foundation (R)
The Migraine Research Foundation is the only nonprofit devoted solely to funding migraine research. We raise money to award innovative research grants to discover migraine’s causes and improve the treatments so that the 1 billion sufferers worldwide can someday find relief. Since our founding in 2006, we’ve supported 91 researchers in 12 countries. 100% of all donations go to fund research as our expenses are covered by generous donors.
Learn more about Migraine Research Foundation:
Miles for Migraine (E) (A) (EV)
Education, Advocacy, Events
Miles for Migraine is a registered 501(c)(3) nonprofit organization with the mission of improving the lives of people with migraine and other headache disorders, and their families, by raising public awareness about this disease, and helping to find a cure. Miles for Migraine produces fun walk/run events, typically a 2-mile walk and 5K and 10K races to raise money for migraine research. We also host adult education days, and a youth program for kids and teens impacted by migraine and other headache disorders.
Learn more about Miles for Migraine:
My Chronic Brain (M)
Magazine, Twitter Chat
My Chronic Brain is a new magazine designed specifically for people with Chronic Migraine and those they interact with–from caregivers to families, friends, and healthcare providers. We arm readers with information in simple, easy to understand formats to help them live their exceptional lives.
We’re accessible online, for free. We know that taking care of your health is expensive. We don’t want to be.
We operate without profit. Our writers, designers, and editors volunteer their time and talents so that patients and others can access this information easily without the usual cost of a magazine subscription.
“We feel it is vital to educate others on our disease and advocate wherever possible. Shades for Migraine is a great way to bring attention and inform others.”
Learn more about My Chronic Brain:
National Headache Foundation (E) (R) (A)
Education, Research, Advocacy
Founded in 1970, the National Headache Foundation is the oldest and largest foundation for patients with headache. Its mission is “To cure headache, and end its pain and suffering.” Its vision is “A World Without Headache.” The foundation is the premier educational and informational resource for those with headache, healthcare providers, and the public. The work of the foundation is through education, awareness, advocacy, and research. In order to help patients access quality healthcare for headaches, the Foundation established the Certificate of Added Qualification in Headache Medicine for physicians, nurse practitioners, physician assistants, dentists, and psychologists who treat headache patients. It publishes a magazine, HeadWise® and monthly e-newsletter, HeadFirst.
“The National Headache Foundation is thrilled to participate in Shades For Migraine to help
raise awareness in a creative, fun, and engaging way.”
Learn more about National Headache Foundation:
Patient Advocate Foundation (PAF) (A)
Learn more about the Patient Advocate Foundation:
The Daily Migraine (B)
The Daily Migraine website is the online home of people with chronic migraine. It is a source of help, hope, and humor derived from the experiences of Lisa Jacobson. It provides a community forum and a huge library of educational and informational resources. We can ultimately use our strength and size to attract worldwide attention, advocate for research, and execute initiatives to help chronic migraineurs get their lives back. Our ultimate vision is a world without chronic migraine.
Learn more about the Daily Migraine:
U.S. Pain Foundation (E) (A) (SG) (M)
Education, Advocacy, Support Group, Magazine
Through our multiple programs and services, we work to enhance the quality of life for people with pain, improve patient outcomes, address access and affordability issues, and increase public awareness and empathy for the issue of pain. The U.S. Pain Foundation is an independent nonprofit 501(c)(3) organization.
“U.S. Pain takes part in Shades for Migraine to raise migraine awareness as well as offer support to the millions of individuals living with headache and migraine diseases. The campaign is an opportunity to start a conversation that hopefully breaks down barriers to treatment options, societal stigma, and access to care. U.S. Pain proudly joins the SFM efforts to recognize those living with migraine and create further awareness, understanding and support for the community. “
Learn more about U.S. Pain Foundation:
Vestibular Disorders Association (VeDA) (E) (A) (SG)
Education, Advocacy, Support Group
VeDA supports and empowers vestibular patients on their journey back to balance. We do this through education, advocacy, and by connecting them with vestibular healthcare specialists. Many of the patients we support suffer from vestibular migraine.
“VeDA supports vestibular migraine patients in their journey toward recovery. We believe that by connecting with others we can learn coping strategies and a collective sense of empowerment.”
Learn more about VeDA:
Headache and Migraine Centers
Pediatric Headache Center of Richmond (E) (A) (T)
Education, Advocacy, Outpatient Neurology Clinic
“We take part in the Shades for Migraine Solidarity Day because we believe that it is important to advocate for our patients and all those who suffer from migraines and headaches. We also believe that it is part of our mission and duty not only as a doctor but as an organization to raise awareness about the debilitating effects of migraines and how migraines impact individuals’ daily living tasks. We are hoping that by raising awareness this will lead to more funding for research and better treatment options. Dr. Alford also provides concussion care and advocates for increased concussion awareness with a special interest in post-concussive headaches.”
Learn more about the Pediatric Headache Center of Richmond:
National Migraine Centre (T) (E) (R)
Diagnosis & Treatment, Education, Research
As a specialised clinic National Migraine Centre has acquired a substantial body of knowledge over the years; knowledge that is constantly evolving. Some of this comes from being a research centre, but most of it comes from the patients they see. Not only do the results of our research feed directly into their clinical care; the information from their patients also feed directly into their research.
All their medical staff are fully qualified doctors with a specialist interest in migraine and headache, and are registered with the UK’s General Medical Council. Therefore your headaches will never be dismissed as trivial. Their doctors provide expertise on various specialist areas including: neurology, women’s health and ophthalmology. You will be assigned to one specialist who you will usually see at each of your visits.
“Migraine is not just a headache – it is a debilitating neurological condition that is misunderstood misdiagnosed and mistreated. It is vitally important that more people become more aware of migraine and this is why we support the Shades for Migraine coalition.“
Learn more about National Migraine Centre:
MIGRAINE BLOGS AND GROUPS
Achy Smile (A) (SG) (B)
Advocacy, Support Group, Blog, Awareness Apparel
Achy Smile is a blog written by Erica Nicole Carrasco of Midland, Texas, now living in Fayetteville, North Carolina. She helps her husband, Stephen, raise their two teens, Marissa and Noah, through a life with hemiplegic migraine and comorbid diseases. Their children, who also live with migraine disease, are both full-time students learning how to thrive with Erica at their side. She is a Speak Your Migraine spokesperson and a partner of the American Migraine Foundation. In addition to her advocacy work, Erica works closely with Chronic Migraine Awareness, Inc. to provide awareness apparel through her shop, Achy Smile Shop.
Learn more about Achy Smile:
CHRONIC MIGRAINE ELLIE (B)
Ellie is a 20 year old college student double majoring in History and the Science in Society Program. She is passionate about raising awareness and educating others about migraines and invisible illnesses because of her own struggle and experiences with chronic migraines.
“My goal is to raise awareness about living with migraines. Public perception of chronic illnesses is still very negative, especially invisible chronic illnesses because we “look fine” on the outside. Hopefully, you’ll learn more about migraines and living with a chronic illness as you read more from my blog!”
The Counterfactual Brain (B) (E) (A)
Blog, Education, Advocacy
The Counterfactual Brain is a blog about Beth, a 30-something with a PhD and chronic migraine living in Vermont with her cat named Sophie. She used to be a 30-something living in Boston with a blossoming career in education program evaluation. Then chronic migraine hit. The name “Counterfactual Brain” borrows a concept from research. Beth is constantly wishing she had a clone, one who would experience migraine triggers for her while she didn’t so they could compare the outcomes. Understanding triggers now that her migraine is chronic is a recurring theme in her blog posts, along with other trials, tribulations, and tips on life with chronic migraine. Her hope is to make chronic migraine less scary for others going through the same experience.
“I take part in Shades for Migraine because any activity that I can do to bring attention how migraine disease differs from an everyday headache, how debilitating migraine can be, and how disproportionately underfunded it is, is worth my time and effort. This is a fun and easy way to engage our friends, family, and even pets in the cause, and make everyone a migraine advocate.”
Learn more about The Counterfactual Brain:
GOLDEN GRAINE (B)
ISRAEL MIGRAINE SUPPORT AND INFORMATION FACEBOOK GROUP (SG) (E)
We are a facebook group started by chronic migraine suffers to bring Awareness, advocacy, education, community and research to headache suffers and migraines suffers in Israel. There is very little awareness of headache and migraine here in Israel and we would like to change that from the medical field to the everyday person. We aim to give patients the tools they need to get help through everything they need.
We hope to grow to an official organization in the next few months.
The group was founded by group of chronic migraine sufferers that would like to see more awareness, education and fight for advocacy for sufferers via government benefits as well as in the workplace.
THE MIGRAINE DIVA (B)
Jaime Sanders is a blogger and patient advocate who lives in Virginia with her husband and three children. She has had a life-long journey with migraine disease and lived most of her adult life with depression. From a toddler with abdominal migraine to a wife and mother with chronic migraine, Jaime has learned to turn her pain into empowerment over the past 37 years. Through her advocacy work and blog, Jaime’s mission is to make a very invisible disease visible to the rest of the world and validate the real pain of millions. She works with several non-profit organizations in a collaborative effort to educate, empower and uplift migraine patients and their caregivers. As the Migraine Patient Advocate Coordinator for Global Healthy Living Foundation, Jaime’s role is to help recruit migraine patients into the advocacy role to change legislature and insurance policies to improve their access to care on the state level. Creating migraine and mental health specific content is one of her passions as it helps to keep her connected to those communities while also offering support, compassion and validation for illnesses that are highly stigmatized and misunderstood.
THE MIGRAINE CHRONICLES (B)
The Migraine Chronicles is where author, editor, and Migraine.com writer Sarah Hackley gets candid about life with intractable chronic migraine. From parenting and relationships to individual responses to new medications and unusual treatments, Sarah takes a frank look at it all. Regular round-ups of other great sites and bloggers included!
My Migraine Life (E) (A) (SG) (B)
Education, Advocacy, Support, Blog
Advocacy, awareness and community building blog. Stories of how My Migraine Life exists through children, travel, teaching and animals.
“We participate because it’s a fun way to spread the word and encourage others to do so.”
Learn more about My Migraine Life:
The Migraine Warrior Blog (E) (A) (B)
Education, Advocacy, Blog
The Migraine Warrior Blog and its companion Facebook page were created by Patient Advocate Michelle Tracy after being diagnosed with chronic migraine disease at age 19. While trying to find meaning in her pain, Michelle realized that her thoughts and experiences had the potential to help others even as she lay in a dark room, unable to lift her head. Her mission to empathize, educate, and empower the millions of people living with migraine disease has led her to partner with many organizations in the migraine community and to both write and speak about her life as an advocate and migraine warrior, often with a focus on mental health and stigma.
“Migraine is often thought of as an isolating, “invisible” illness which contributes to the stigma surrounding the disease. When people living with migraine disease are able to outwardly acknowledge it with visible cues like sunglasses, it makes the disease itself more visible, raises awareness, and creates connections with other migraine warriors and the people that love and care for them. One of The Migraine Warrior’s core beliefs is that Caring is Curing and the Shades for Migraine campaign is an excellent example of how creating connections will lead to better treatments and, ultimately, a cure.”
Learn more about The Migraine Warrior Blog:
United Advocacy Australia (E) (A) (R)
Education, Advocacy, Research
Judy blogs about events such as World Autoimmune Arthritis Day and NERVEmber. She blogs for support and understanding of patients and their families or friends with Chronic Illness around the world. She also posts in her various social media channels about Mental Health and other conditions. She is bringing a world together in support of Illness. United We Stand Hand to Hand.
Judy lives with RA, Fibromyalgia, Psoriasis, Rocacea, Mild spinal stenosis, Polymyalgia Rheumatica, Migraines, GERD, TMJ Disorder, Diabetes, Hypertension, Fatigue, General Anxiety Disorder, Agoraphobia, Social Anxiety Disorder. Judy loves to support people’s campaigns especially Shades for Migraine as she has lived with migraine since she was 7 years old.
“As a 39-year-old and someone who has lived with Migraine since the age of 7 I take part in the Shades For Migraine campaign to show support in a united front to other people who also live with Migraine and together we raise awareness. An estimated 1 Billion people worldwide live with Migraine I will support, share and educate about Migraine until the world is free from this monster.”
Learn more about United Advocacy Australia:
If you are an organization, medical center or blogger that is interested in joining the Shades for Migraine coalition,
please email email@example.com.