Organization

Our mission is to empower people living with migraine and other headache disorders through training and mentoring. We are developing a patient advocate incubator to train and mentor patients and caregivers with the skills necessary to take an informed, active role in their own health care, encourage, educate, and advocate for others, raise awareness through involvement in local, regional, national, and international advocacy efforts, and volunteer or work for migraine and headache organizations. Our team has over 30 years of experience in patient education and health care advocacy. We’ve earned the respect and confidence of leading physicians, researchers, and patients. We have also assembled a team of headache specialists to review all our content for medical accuracy. We produce all content in-house, with complete editorial control. We never curate, purchase, or outsource content. We have also made a public commitment to our readers that our team will receive continuing medical education through attendance at medical conferences, access to medical journals, and personal study.

VeDA supports and empowers vestibular patients on their journey back to balance. We do this through education, advocacy, and by connecting them with vestibular healthcare specialists. Many of the patients we support suffer from vestibular migraine.

“VeDA supports vestibular migraine patients in their journey toward recovery. We believe that by connecting with others we can learn coping strategies and a collective sense of empowerment.”

The U.S. Pain Foundation is the leading advocacy organization for people with pain. Our mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians.Through our multiple programs and services, we work to enhance the quality of life for people with pain, improve patient outcomes, address access and affordability issues, and increase public awareness and empathy for the issue of pain. The U.S. Pain Foundation is an independent nonprofit 501(c)(3) organization.

 

“U.S. Pain takes part in Shades for Migraine to raise migraine awareness as well as offer support to the millions of individuals living with headache and migraine diseases. The campaign is an opportunity to start a conversation that hopefully breaks down barriers to treatment options, societal stigma, and access to care. U.S. Pain proudly joins the SFM efforts to recognize those living with migraine and create further awareness, understanding and support for the community.”

Established in memory of our daughter and sister, Danielle, our mission is to raise awareness and provide support and access to treatment for those living with migraine disease, especially young adults and children. On June 21, we are proud to join the Shades for Migraine Coalition at our “Shine Her Light” celebration in Salt Lake City.

Patient Advocate Foundation (PAF) is the leading direct patient services organization with a mission to eliminate obstacles for patients trying to access quality healthcare. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention or debt crisis matters as they relate to their diagnosis of a chronic, life-threatening and debilitating illness. Services are provided free of charge to patients, their caregivers and provider team.

Patient Advocate Foundation has launched the Migraine CareLine — a dedicated phone number that provides one-on-one case management assistance for those with migraine who need help appealing insurance denials, assisting with the Social Security or employer disability process, connecting to financial resources and much more. All services are provided at no charge. 1-866-688-3625 or https://migraine.pafcareline.org/

Founded in 1970, the National Headache Foundation is the oldest and largest foundation for patients with headache. Its mission is “To cure headache, and end its pain and suffering.” Its vision is “A World Without Headache.” The foundation is the premier educational and informational resource for those with headache, healthcare providers, and the public. The work of the foundation is through education, awareness, advocacy, and research. In order to help patients access quality healthcare for headaches, the Foundation established the Certificate of Added Qualification in Headache Medicine for physicians, nurse practitioners, physician assistants, dentists, and psychologists who treat headache patients. It publishes a magazine, HeadWise® and monthly e-newsletter, HeadFirst.

 

“The National Headache Foundation is thrilled to participate in Shades For Migraine to help raise awareness in a creative, fun, and engaging way.”

My Chronic Brain is a new magazine designed specifically for people with Chronic Migraine and those they interact with–from caregivers to families, friends, and healthcare providers. We arm readers with information in simple, easy to understand formats to help them live their exceptional lives.We’re accessible online, for free. We know that taking care of your health is expensive. We don’t want to be.We operate without profit. Our writers, designers, and editors volunteer their time and talents so that patients and others can access this information easily without the usual cost of a magazine subscription.

 

“We feel it is vital to educate others on our disease and advocate wherever possible. Shades for Migraine is a great way to bring attention and inform others.”

Miles for Migraine is a registered 501(c)(3) nonprofit organization with the mission of improving the lives of people with migraine and other headache disorders, and their families, by raising public awareness about this disease, and helping to find a cure. Miles for Migraine produces fun walk/run events, typically a 2-mile walk and 5K and 10K races to raise money for migraine research. We also host adult education days, and a youth program for kids and teens impacted by migraine and other headache disorders.

Migraine.com is Health Union’s online community dedicated to people living with migraine, where patients and supporters of people living with this condition can connect, share experiences, and learn about managing the condition. At Migraine.com, we understand the challenges of living with migraine. Whether you’re newly diagnosed, undiagnosed, or already know the ropes, the Migraine.com community is here for you. Because we understand migraine is more than “just a headache.”

The Migraine World Summit is largest patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education. Each year the event brings together tens of thousands of people to learn from world-leading doctors, experts, and specialists. It is available free and online.